Palliative Care Resources
A. International Instruments
Binding
- UN Office on Drugs and Crime, Single Convention on Narcotic Drugs (1961; amended 1972).
www.unodc.org/unodc/en/treaties/single-convention.html.
Nonbinding
- UN Committee on the Rights of the Child, General Comment No. 3: HIV/AIDS and the Rights of the Child, CRC/GC/2003/3 (March 17, 2003). www2.ohchr.org/english/bodies/crc/comments.htm.
- UN Committee on the Rights of the Child, General Comment No. 4: Adolescent Health, CRC/GC/2003/4 (July 1, 2003). www2.ohchr.org/english/bodies/crc/comments.htm.
- UN Economic and Social Council, Treatment of pain using opioid analgesics, ECOSOC Resolution 2005/25 (July 22, 2005). www.un.org/en/ecosoc/docs/2005/resolution%202005-25.pdf.
- UN General Assembly, Declaration on the Protection of All Persons from Being Subjected to Torture and Other Cruel, Inhuman or Degrading Treatment or Punishment, Resolution 3452 (XXX), A/RES/30/3452 (1975). http://www.un-documents.net/a30r3452.htm.
- UN General Assembly, Principles of Medical Ethics Relevant to the Role of Health Personnel, Particularly Physicians, in the Protection of Prisoners and Detainees against Torture and Other Cruel, Inhuman or Degrading Treatment or Punishment, A/RES/37/194 (1982). www.un.org/documents/ga/res/37/a37r194.htm.
- UN General Assembly, Principles of Medical Ethics Relevant to the Role of Health Personnel, Particularly Physicians, in the Protection of Prisoners and Detainees against Torture and Other Cruel, Inhuman or Degrading Treatment or Punishment, A/RES/37/194 (1982). www.un.org/documents/ga/res/37/a37r194.htm.
- UN General Assembly, Political Declaration of the High-level Meeting of the General Assembly on the Prevention and Control of Non-communicable Diseases, Resolution A/66/L.1 (September 16, 2011). www.un.org/ga/search/view_doc.asp?symbol=A/66/L.1.
- UN General Assembly, Declaration of Commitment on HIV/AIDS, Resolution S-26/2 (August 2, 2001). www.un.org/ga/aids/docs/aress262.pdf.
- UN General Assembly, Political Declaration on HIV/AIDS, A/RES/60/262 (June 15, 2006). http://data.unaids.org/pub/report/2006/20060615_hlm_politicaldeclaration_ares60262_en.pdf.
- UN General Assembly, Political Declaration on HIV and AIDS: Intensifying Our Efforts to Eliminate HIV and AIDS, A/RES/65/277 (July 8, 2011). www.unaids.org/en/media/unaids/contentassets/documents/document/2011/06/20110610_un_a-res-65-277_en.pdf.
- UN Office on Drugs and Crime: Commission on Narcotic Drugs, Resolution 53/4 (March 2010). www.unodc.org/documents/commissions/CND-Res-2000-until-present/CND53_4e.pdf.
- WHO, Declaration of Alma-Ata (September 6-12, 1978). www.who.int/publications/almaata_declaration_en.pdf.
- WHO and International Narcotics Control Board, Assistance Mechanism to Facilitate Adequate Treatment of Pain using Opioid Analgesics: Joint Report of the Director-General of the WHO and the President of the INCB (March 2, 2007). www.who.int/medicines/areas/quality_safety/Joint_Report-WHO-INCB.pdf.
- WHO, Ensuring balance in national policies on controlled substances: guidance for availability and accessibility of controlled medicines (2011). www.who.int/medicines/areas/quality_safety/guide_nocp_sanend/en.
- WHO, Expert Committee on Drug Dependence: 34th Report (2006).
whqlibdoc.who.int/trs/WHO_TRS_942_eng.pdf. - WHO, Cancer prevention and control, World Health Assembly Resolution 58.22 (May 2005).
www.who.int/entity/ipcs/publications/wha/cancer_resolution.pdf - WHO, Model List of Essential Medicines (2011). www.who.int/medicines/publications/essentialmedicines.
B. Regional Instruments
Nonbinding
- Active Citizenship Network, European Charter of Patients’ Rights (2002). www.patienttalk.info/european_charter.pdf.
- Council of Europe, Recommendation 24 of the Committee of Ministers to member states on the organization of palliative care (November 12, 2003). www.uni-klu.ac.at/pallorg/downloads/iffpallorg_europarat_english_version.pdf.
- Parliamentary Assembly, Protection of Human Rights and Dignity of the Terminally Ill and Dying, Recommendation 1418 (1999). http://assembly.coe.int/documents/adoptedtext/ta99/erec1418.htm.
- Parliamentary Assembly, Protection of the human rights and dignity of the terminally ill and the dying, Recommendation 1418 (1999). http://assembly.coe.int/Mainf.asp?link=/Documents/AdoptedText/ta99/EREC1418.htm.
C. Other Statements and Declarations
- American Medical Association, House of Delegates, Palliative Care and End-of-Life Care, Resolution 3, A-05 (2006). www.ama-assn.org/resources/doc/hod/a-06bot.pdf.
- Association of Nurses in AIDS Care, Palliative Care: Position Statement (2006). www.nursesinaidscare.org/i4a/pages/index.cfm?pageid=3300.
- Connor S et al., “Declaration on palliative care and MDR/XDR-TB,” The International Journal of Tuberculosis and Lung Disease 16, no. 6 (June 2012): 712-713. www.ncbi.nlm.nih.gov/pubmed/22613682.
- Eastern and Central Europe Palliative Care Taskforce, The Poznan Declaration, 9th Palliative Medicine Advanced Course (1998). www.oncology.am.poznan.pl/ecept/declaration.php.
- European Association for Palliative Care et al., The Prague Charter, www.eapcnet.eu/Themes/Policy/PragueCharter.aspx.
- International Association for Hospice and Palliative Care & Worldwide Palliative Care Alliance, Joint Declaration and Statement of Commitment on Palliative Care and Pain Treatment as Human Rights. http://hospicecare.com/about-iahpc/contributions-to-palliative-care/human-rights.
- International Association for the Study of Pain, Declaration of Montreal: Declaration that Access to Pain Management is a Fundamental Human Right (2011), www.iasp-pain.org/PainSummit/DeclarationOfMontreal.pdf.
- International Federation of Health and Human Rights Organisations, Access to Adequate Pain Treatment (March 31, 2011). http://xa.yimg.com/kq/groups/20454159/1912587409/name/IFHHRO%20Position%20Statement%20Pain%20Treatment.pdf.
- Pogge T, “Montreal Statement on the Human Rights to Essential Medicines,” Cambridge Quarterly of Healthcare Ethics 15, no. 2 (2006). www.economyandsociety.org/events/Pogge_background_paper2.pdf.
- Sebuyira M et al., “The Cape Town Palliative Care Declaration: Home-Grown Solutions for Sub-Saharan Africa,” Journal of Palliative Medicine 6, no. 3 (2003): 341-343. www.ncbi.nlm.nih.gov/pubmed/14509478.
- Second Global Summit of National Hospice and Palliative Care Associations, Declaration on Hospice and Palliative Care [Korea Declaration] (March 2005). www.coe.int/t/dg3/health/Source/KoreaDeclaration2005_en.pdf.
- World Medical Association, Resolution on the Access to Adequate Pain Treatment (October 2011). www.wma.net/en/30publications/10policies/p2.
D. Palliative Care as a Human Right
- Amon J and Lohman D, “Denial of Pain Treatment and the Prohibition of Torture, Cruel, Inhuman or Degrading Treatment or Punishment,” Interights Bulletin 16 no. 4 (November 4, 2011): 172-184. www.hrw.org/sites/default/files/related_material/2011.12%20InterRights%20Bulletin%20Article_only.pdf.
- Breitbart W, “Palliative care as a human right: update.” Palliative Support Care 9, no. 4 (2011): 345-349.
www.experts.scival.com/mskcc/pubDetail.asp?t=pm&id=82055165950&o_id=28. - Brennan F et al., Palliative Care as a Human Right (Open Society Institute, January 2008). www.opensocietyfoundations.org/sites/default/files/pchumanright_20080101.pdf.
- Cohen J, “Palliative care advocacy using the international human rights framework”, http://cop.health-rights.org/teaching/161/Palliative-care-advocacy-using-the-international-human-rights-framework.
- Harding R, “Palliative Care: A Basic Human Right,” Insights 21, no. 8 (February 2006). www.dfid.gov.uk/r4d/PDF/Outputs/IDS/insights_health8.pdf.
- Human Rights Watch, Global State of Pain Treatment: Access to Palliative Care as a Human Rights (2011). www.hrw.org/sites/default/files/reports/hhr0511W.pdf.
- Human Rights Watch, Please Do Not Make Us Suffer Any More: Access to Pain Treatment as a Human Right (2009). www.hrw.org/sites/default/files/reports/health0309web_1.pdf.
- Human Rights Watch, Unbearable Pain: India’s Obligation to Ensure Palliative Care (2009). www.hrw.org/en/reports/2009/10/28/unbearable-pain-0
- Human Rights Watch, Uncontrolled Pain: Ukraine’s Obligation to Ensure Evidence-Based Palliative Care (2011). www.hrw.org/sites/default/files/reports/ukraine0511WebRevised.pdf.
- Lohman D, “Pain Relief: a Human Right”, Guest Message, Human Rights Watch, July 26, 2010. www.hrw.org/en/news/2010/07/26/pain-relief-human-right
- Lohman D, Schleifer R and Amon J, “Access to Pain Treatment as a Human Right,” BMC Medicine 8, no. 8 (January 20, 2010). www.hrw.org/en/news/2010/03/01/access-pain-treatment-human-right.
- Open Society Foundations, Palliative Care as a Human Right, Public Health Fact Sheet (May 2011). www.opensocietyfoundations.org/sites/default/files/palliative-care-human-right-20110524.pdf.
- Silva P, “For the Terminally Ill, Freedom from Pain Is a Human Right”, Voices, Open Society Foundations, May 24, 2011. www.opensocietyfoundations.org/voices/terminally-ill-freedom-pain-human-right.
- UN Human Rights Council, Report of the Special Rapporteur on torture and other cruel, inhuman or degrading treatment or punishment, A/HRC/22/53, February 1, 2013. www.ohchr.org/Documents/HRBodies/HRCouncil/RegularSession/Session22/A.HRC.22.53_English.pdf.
- UN Human Rights Council, Report of the Special Rapporteur on torture and other cruel, inhuman or degrading treatment or punishment, A/HRC/10/44, January 14, 2009. www2.ohchr.org/english/bodies/hrcouncil/docs/10session/A.HRC.10.44AEV.pdf.
- Worldwide Palliative Care Alliance, Access to pain relief: an essential human right: A report for World Hospice and Palliative Care Day 2007, www.worldday.org/reports.
E. Palliative Care – General Resources
- Casarett J, “Special Section: Brief Global Reports on International Palliative Care Projects,” Journal of Pain and Symptom Management 40, no. 6 (2010). www.jpsmjournal.com/issues?issue_key=S0885-3924%2810%29X0006-9.
- Davies E and Higginson I, eds., The Solid Facts: Palliative Care (WHO, 2004). www.euro.who.int/__data/assets/pdf_file/0003/98418/E82931.pdf.
- Kellehear A, Kumar S, and Sallnow L, eds., International Perspectives on Public Health and Palliative Care
(Oxford: Routledge, 2012). www.taylorandfrancis.com/books/details/9780415663502. - Lamas D and Rosenbaum L, “Painful Inequities—Palliative Care in Developing Countries,”The New England Journal of Medicine 366 (2012): 199-201. www.nejm.org/doi/full/10.1056/NEJMp1113622.
- Lynch T, Clark D and Connor S, Mapping Levels of Palliative Care Development: A Global Update 2011, (Worldwide Palliative Care Alliance, 2011). www.worldday.org/reports.
- Stjernsward J et al., “The Public Health Strategy for Palliative Care,” Journal of Pain and Symptom Management 33, no. 5 (May 2007): 486-493. www.hospicepalliativecaresa.co.za/pdf/publications/StjernswardEtAl.pdf.
- WHO, “WHO Definition of Palliative Care”. www.who.int/cancer/palliative/definition.
F. Essential Medicines and Human Rights
- Barrett D, Unique in International Relations? A Comparison of the International Narcotics Control Board and the UN Human Rights Treaty Bodies (International harm Reduction Association, 2008). www.ihra.net/files/2010/06/16/Barrett-UniqueinInternationalRelations.pdf.
- Burris S and Davis C, A Blueprint for Reforming Access to Therapeutic Opioids: Entry Points for International Action to Remove the Policy Barriers to Care (Centers for Law and the Public’s Health: A Collaborative at Johns Hopkins and Georgetown Universities, 2008). http://chlpp.org/category/categories/access-medicines.
- Hogerzeil H.V. and Mirza Z, Access to Essential Medicines as Part of the Right to Health: The World Medicines Situation 2011, WHO/EMP/MIE/2011.2.10. (2011), apps.who.int/medicinedocs/documents/s18772en/s18772en.pdf.
- Human Rights Watch, “Palliative Care & Access to Controlled Medicines” www.hrw.org/en/node/86033#advocacy.
- Human Rights Watch et al., Access to Controlled Medicines, Human Rights and Drug Policy Briefing 5 (2010). www.ihra.net/contents/804.
- Krakauer EL et al., “Opioid Inaccessibility and its Human Consequences: Reports from the Field,” Journal of Pain and Palliative Care Pharmacotherapy 24, no. 3 (September 2010): 239-243. http://informahealthcare.com/doi/abs/10.3109/15360288.2010.501852.
- PLoS Medicine, Are Drug Companies Living Up to Their Human Rights Responsibilities? (2010) [perspectives by Sofia Gruskin and Zyde Raad, Geralyn Ritter, and Paul Hunt and Rajat Khosla]. www.plosmedicine.org/article/browse/issue/info%3Adoi%2F10.1371%2Fissue.pmed.v07.i09.
- Schleifer R and Bruce RD, Ethical and Human Rights Imperatives to Ensure Medication-Assisted Treatment for Opioid Dependence in Prisons and Pre-trial Detention (2008). www.journals.elsevierhealth.com/periodicals/drupol/issues/contents?issue_key=S0955-3959%2808%29X0060-X.
- UN General Assembly, Report of the Special Rapporteur on the Right to Health [main focus: the right to health and international drug control, compulsory treatment for drug dependence and access to controlled medicines], A/65/255, August 10, 2010. http://daccess-dds-ny.un.org/doc/UNDOC/GEN/N10/477/91/PDF/N1047791.pdf.
- UN General Assembly, Report of the Special Rapporteur on the Right to Health [main focus: accountability mechanisms and human rights responsibilities of pharmaceutical companies in relation to access to medicines], A/63/263, August 28, 2008. www.who.int/medicines/areas/human_rights/A63_263.pdf.
- UN Human Rights Council, Report of the Special Rapporteur on the Right to Health, Expert consultation on access to medicines as a fundamental component, A/HRC/17/43, March 16, 2011. http://daccess-dds-ny.un.org/doc/UNDOC/GEN/G11/118/42/PDF/G1111842.pdf.
- UN Human Rights Council, Report of the Special Rapporteur on the Right to Health [main focus: right to health in the context of access to medicines and intellectual property rights], A/HRC/11/12, March 31, 2009. http://daccess-dds-ny.un.org/doc/UNDOC/GEN/G09/127/11/PDF/G0912711.pdf.
- WHO, “Model Lists of Essential Medicines.” www.who.int/medicines/publications/essentialmedicines.
- WHO, “Medicines: access to controlled medicines (narcotic and psychotropic substances),” Fact sheet N°336 (June 2010), www.who.int/mediacentre/factsheets/fs336/en/index.html.
- WHO, Framework of the Access to Controlled Medications Program, WHO/QSM/2007.2 (2007). http://apps.who.int/medicinedocs/documents/s14860e/s14860e.pdf.
G. Litigation and Legal Services
- Ezer T, “The Start of a New Movement: Access to Justice for Palliative Care Patients,” Voices, Open Society Foundations, September 14, 2012. www.opensocietyfoundations.org/voices/start-new-movement-access-justice-palliative-care-patients.
- Ezer T, “United Lawyers with Hospices in Georgia,” Voices, Open Society Foundations, March 28, 2011. www.soros.org/voices/uniting-lawyers-hospices-georgia.
- Ezer T et al., Promoting Public Health through Clinical Legal Education: Initiatives in South Africa, Thailand, and Ukraine (2008). www.wcl.american.edu/hrbrief/17/2ezer.pdf.
- Ezer T and Marston J, “Comprehensive care: palliative care and legal services in South Africa,” HIV/AIDS Policy & Law Review 12, no. 2/3 (2007). www.cop.health-rights.org/files/7/0/706fef1943936e8d388925c8bcf7642d.pdf.
- Guellec D, Delhi High Court’s Surprise Decision (1998). http://creative.sulekha.com/delhi-high-court-s-surprise-decision_99051_blog.
- Hogerzeil HV et al., “Is Access to Essential Medicines as Part of the Fulfilment of the Right to Health Enforceable through the Courts?” The Lancet 368, no. 9532 (2006): 305-311. www.ncbi.nlm.nih.gov/pubmed/16860700.
- Hospice Palliative Care Association of South Africa, Legal Aspects of Palliative Care (Open Society Foundations, 2012). www.hpca.co.za/Legal_Resources.html.
- Jansen RM, “Inadequate treatment of pain: time for the South African courts to redress this human rights violation?” Med Law 29, no. 4 (2010): 497-522. www.ncbi.nlm.nih.gov/pubmed/22145547.
- Kenya Hospices and Palliative Care Association, Know Your Palliative Care Rights, http://cop.health-rights.org/trainings/84/Know-Your-Palliative-Care-Rights.
- Kenya Hospices and Palliative Care Association, Guidelines to Making a Will, http://kehpca.org/wp-content/uploads/a%20will.pdf.
- Kenya Hospices and Palliative Care Associations, What Is Power of Attorney, http://kehpca.org/wp-content/uploads/attorney.pdf.
- Nugent JS, “’Walking into the Sea’ of Legal Fiction: An Examination of the European Court of Human Rights, Pretty v. United Kingdom and the Universal Right to Die,” Journal of Transnational Law & Policy 13, no. 1 (2003): 183-212. www.law.fsu.edu/journals/transnational/vol13_1/Nugent.pdf.
- Open Society Foundation for South Africa, Linking Legal Advocates and Palliative Care Providers in South Africa, Meeting Report (October 16, 2006). http://cop.health-rights.org/teaching/161/Linking-Legal-Advocates-and-Palliative-Care-Providers-in-South-Africa–Meeting-Report-.
- Rodabaugh K et al., “A Medical–Legal Partnership as a Component of a Palliative Care Model,” Journal of Palliative Medicine 13, no. 1 (2010): 15-18. www.ncbi.nlm.nih.gov/pubmed/19827963.
- Treatment Action Campaign v Minister of Health (Kwa-Zulu-Natal), Constitutional Court of South Africa (2002). www.tac.org.za/Documents/MTCTCourtCase/ConCourtJudgmentOrderingMTCTP-5July2002.pdf.
H. Key Populations – Cancer Patients
- Black F and Brown S, eds., “Special Issue: INCTR Palliative Care PAX Program.” INCTR 9, no. 2 (December 2009-2010). www.inctr.org/fileadmin/user_upload/inctr-admin/Network%20Magazine/Vol%209%20No%202%20Dec%202009%20LLR.pdf.
- Foley KM et al., ”Pain Control for People with Cancer and AIDS,” in Disease Control Priorities in Developing Countries, 2nd Edition (Washington DC: World Bank, 2006): 981-994. www.ncbi.nlm.nih.gov/books/NBK11800/.
- Jemal A. et al., “Cancer Burden in Africa and Opportunities for Prevention,” Cancer 118 no. 18 (September 15, 2012): 4372-4384. http://onlinelibrary.wiley.com/doi/10.1002/cncr.27410/abstract.
- O’Brien M, Access to essential Pain Medicines an Important Goal in the Fight Against NCDS, The Global Fight Against Cancer (May 14, 2012). http://cancer.blogs.com/international/2012/05/access-to-essential-pain-medicines-an-important-goal-in-the-fight-against-ncds.html.
- WHO, “Publications on cancer.” www.who.int/cancer/publications/en/#guidelines.
- WHO, Cancer Control: Knowledge into Action, WHO Guide to Effective Programmes (2007). www.who.int/cancer/modules/Order%20form.pdf.
- WHO, Cancer Pain Relief: with a Guide to Opioid Availability, 2d ed. (1996). apps.who.int/bookorders/anglais/detart1.jsp?codlan=1&codcol=15&codcch=2247.
- WHO, “Cancer: Palliative Care.” www.who.int/cancer/palliative/en/.
I. Key Populations – Children
- ACT, A Guide to the Development of Children’s Palliative Care Services (2009).
- EAPC, “IMPaCCT: Standards for paediatric palliative care in Europe,” European Journal of Palliative Care 14, no. 3 (2007): 109-114. www.eapcnet.eu/LinkClick.aspx?fileticket=ShMQyZuTfqU%3D.
- Goldman A, Hain R, and Liben S, Oxford Textbook of Palliative Care for Children (Oxford: Oxford University Press, 2012).
- Human Rights Watch, Needless Pain: Government Failure to Provide Palliative Care for Children in Kenya (2010). www.hrw.org/node/92619.
- International Children’s Palliative Care Network, Submission to the Committee on the Rights of the Child on Children’s Right to Health, January 6, 2012. www2.ohchr.org/english/bodies/crc/docs/CallSubmissions_Art24/PallativeCareNetwork.docx.
- Juliane Kippenberg, Needless Pain: Government Failure to Provide Palliative Care for Children in Kenya (Human Rights Watch, 2010). www.hrw.org/node/92939.
- Palermo T et al., Assessment and Management of Children with Chronic Pain: A Position Statement from the American Pain Society (American Pain Society, 2012). www.americanpainsociety.org/uploads/pdfs/aps12-pcp.pdf.
- Boucher S and Downing J, eds., Touching Rainbows: Acknowledging the Child’s Voice in Palliative Care (International Children’s Palliative Care Network, 2011). http://africanpalliativecare.org/index.php?option=com_content&view=article&id=180:touching-rainbows-acknowledging-the-childs-voice-in-palliative-care&catid=13:patient-voices.
- UNICEF, The Framework for the protection, care and support of orphans and vulnerable children living in a world with HIV and AIDS (July 2004). www.unicef.org/aids/files/Framework_English.pdf.
- WHO, Cancer Pain Relief and Palliative Care in Children (1998). www.who.int/bookorders/francais/detart2.jsp?sesslan=2&codlan=1&codcol=15&codcch=459.
J. Key Populations – Older Persons
- Davies E and Higginson I, eds., Better Palliative Care of Older People (WHO, 2004). www.euro.who.int/__data/assets/pdf_file/0009/98235/E82933.pdf.
- UN General Assembly, Thematic study on the realization of the right to health of older persons by the Special Rapporteur on the right of everyone to the enjoyment of the highest attainable standard of physical and mental health (section on palliative care), A/HRC/18/37 (July 4, 2011). www2.ohchr.org/english/bodies/hrcouncil/docs/18session/A-HRC-18-37_en.pdf.
K. Key Populations – End-of-Life Care
- Berzoff J and Silverman R, eds., Living with Dying: A Handbook for End-of-Life Healthcare Practitioners (New York: Columbia University Press, 2004).
- Economist Intelligence Unit, The Quality of Death: Ranking End-of-Life Care Across the World, Economist Intelligence Unit (2010). www.eiu.com/site_info.asp?info_name=qualityofdeath_lienfoundation&page=noads.
- WHO, Palliative Care: Symptom Management and End of Life Care, Integrated Management of Adolescent and Adult Illness (June 2004). www.who.int/3by5/publications/documents/en/genericpalliativecare082004.pdf.
L. Key Populations – HIV and AIDS Patients
- Association of Nurses in AIDS Care, Pain Management for Persons Living with HIV/AIDS (2005). www.nursesinaidscare.org/i4a/pages/Index.cfm?pageID=3393.
- Canadian HIV/AIDS Legal Network, “Comprehensive Care : Palliative Care and Legal Services in South Africa,“ HIV/AIDS Policy & Law Review 12 no. 2/3 (December 2007): 66. http://library.catie.ca/PDF/ATI-10000s/18695-V12N2e.pdf.
- Foley KM et al., “Pain Control for People with Cancer and AIDS,“ in Jamison DT et al., ed., Disease Control Priorities in Developing Countries, 2nd ed. (Washington DC: World Bank, 2006): 981-994. www.ncbi.nlm.nih.gov/books/NBK11800/.
- Gwyther L et al., eds., A Clinical Guide to Supportive and Palliative Care for HIV/AIDS in Sub-Saharan Africa (2006). www.apca.co.ug/publications/ClinicalGuide/index.htm.
- Harding R et al., “Quality HIV Care to the End of Life,” Clinical Infectious Diseases 52 no. 4 (February 15, 2011): 553-554. http://cid.oxfordjournals.org/content/52/4/553.full.
- Open Society Foundations, The State of Palliative Care and HIV/AIDS in Latin America (2008). www.opensocietyfoundations.org/publications/state-palliative-care-and-hivaids-latin-america.
- UNAIDS, AIDS: Palliative Care, UNAIDS Technical Update (October, 2000). http://www.unaids.org/en/media/unaids/contentassets/dataimport/publications/irc-pub05/jc453-pallicare-tu_en.pdf
- WHO, A Community Health Approach to Palliative Care for HIV/AIDS and Cancer Patients in Sub-Saharan Africa (2012). www.who.int/hiv/pub/prev_care/palliativecare/en/.
- UNODC, WHO, and UNAIDS, HIV Prevention, Care, Treatment and Support in Prison Settings: A Framework for an Effective National Response (2006). www.unodc.org/documents/hiv-aids/HIV-AIDS_prisons_Oct06.pdf.
M. Key Populations – People Who Use Drugs
- Special Rapporteur on Health, Submission to the Committee against Torture regarding drug control laws (Oct. 19, 2012). www.ohchr.org/Documents/Issues/Health/drugPolicyLaw.pdf.
- Special Rapporteur on Health, Right to health and international drug control, compulsory treatment for drug dependence and access to controlled medicines (2010). http://daccess-ods.un.org/TMP/5447230.33905029.html.
N. Key Populations – TB Patients
- Harding R et al., “Palliative and end-of-life care in the global response to multidrug-resistant tuberculosis,” The Lancet Infectious Diseases 12 no. 8 (June 11, 2012): 643-646. www.thelancet.com/journals/laninf/article/PIIS1473-3099(12)(70084-1/abstract.
- Hospice Palliative Care Association of South Africa, Guidelines for Providing Palliative Care to Patients with Tuberculosis (2011). www.hospicepalliativecaresa.co.za/pdf/patientcare/TB_Guidelines_2011.PDF.
O. Multimedia
- Human Rights Watch, “Right to Relief: Palliative Care in India” [3 minute video on need to integrate palliative care into routine health care] (2009). www.hrw.org/en/video/2009/10/23/right-relief-palliative-care-india.
- Human Rights Watch, “Jethro’s Story” and “Sammy’s Story,” Voices for Palliative Care in Kenya [short advocacy video on children’s lack of access to pain medication in Kenya] (2010). www.hrw.org/en/node/92939.
- International Palliative Care Resource Center, “Treat the Pain” Project [25 short advocacy videos focused on the global epidemic of untreated pain] (2011). www.ipcrc.net/news/category/treat-the-pain.
- International Palliative Care Resource Center, “LIFE Before Death” Project [25 short advocacy videos focused on the need for palliative and end-of-life care] (2011). www.ipcrc.net/news/category/treat-the-pain.
- New Media Advocacy Project (N-MAP), “Access to Palliative Care in Armenia” [5 minute advocacy video] (2012). http://vimeo.com/50197680.
- Open Society Foundations, “50 milligrams is not enough”[13 minute advocacy video on terminal illness and freedom from pain] (2011). http://youtu.be/sWeUDNyqo1I.
- Open Society Georgia Foundation, “Human Rights and Palliative Care” [13 minute video on legal advocacy and support for palliative care in Georgia] (2011). http://youtu.be/ODKlumpVHVI .
P. Advocacy and Training Manuals
- African Palliative Care Association, Advocacy Workshop for Palliative Care in Africa: A Focus on Essential Pain Medication Accessibility in Southern Africa (2008), http://sa.usaid.gov/southern_africa/sites/south_africa/files/APCA%20Pal%20care%20Advocacy%20wkshp_Namibia.pdf.
- Powell R and Downing J eds., Mentoring for Success: A Manual for Palliative Care Professionals, Organizations and Associations (African Palliative Care Association, 2007). www.ngoconnect.net/documents/592341/0/R1+%26+2+SOTA+-+Mentoring+for+Success.
Q. Websites
- African Palliative Care Association (APCA): www.africanpalliativecare.org.
- American Academy of Hospice and Palliative Medicine (AAHPM): www.aahpm.org.
- Asia Pacific Hospice Palliative Care Network (APHN): http://aphn.wordpress.com.
- Association for Children’s Palliative Care (ACT): www.act.org.uk.
- Asociación Latinoamericana de Cuidados Paliativos (ALCP) [Latin American Association for Palliative Care]: www.cuidadospaliativos.org.
- End of Life Palliative Care Education Resource Center (EPERC): www.eperc.mcw.edu.
- European Association for Palliative Care (EAPC): www.eapcnet.org.
- Foundation for Hospices in Sub-Saharan Africa (FHSSA): www.fhssa.org.
- Global Access to Pain Relief Initiative (GAPRI): www.gapri.org.
- Help the Hospices: www.helpthehospices.org.uk.
- Hospice Africa Uganda: www.hospiceafrica.or.ug.
- Hospice Information Service: www.hospiceinformation.info.
- Initiative for Pediatric Palliative Care (IPPC): www.ippcweb.org.
- International Association for Hospice and Palliative Care (IAHPC): www.hospicecare.com.
- International Association for the Study of Pain (IASP): www.iasp-pain.org.
- International Association of Providers of AIDS Care (IAPAC): www.iapac.org.
- International Centre on Human Rights and Drug Policy (ICHRDP): www.humanrightsanddrugs.org.
- International Children’s Palliative Care Network (ICPCN): www.icpn.org.uk.
- International Network for Cancer Treatment and Research (INCTR): www.inctr.org.
- International Observatory on End of Life Care: www.lancs.ac.uk/shm/research/ioelc;
www.eolc-observatory.net/global_analysis/country_by_country.php. - National Hospice and Palliative Care Organizations (NHPCO): www.nhpco.org/templates/1/homepage.cfm.
- NCD (Non-Communicable Disease) Alliance: www.ncdalliance.org.
- Open Society Institute, International Palliative Care Initiative:
www.opensocietyfoundations.org/topics/palliative-care. - Pain and Policy Studies Group: www.painpolicy.wisc.edu.
- University of Wisconsin, Pain and Policy Study Group [WHO Collaborating Centre]: www.painpolicy.wisc.edu.
- Union for International Cancer Control (UICC): www.uicc.org.
- World Cancer Congress: www.worldcancercongress.org.
- World Hospice and Palliative Care Day: www.worldday.org.
- Worldwide Palliative Care Alliance: www.thewpca.org.